This video is part of our conversation series produced in partnership with StoryCorps to help change the narrative around neurodegenerative disease. 

Savannah Wilkes talks to her lifelong friend, Sydney Compton about the toll her mother’s Huntington’s disease took on her whole family—and the ways she found to support her mom as best she could.

Thanks to our friends at Our Odyssey for introducing us to Sydney. Our Odyssey’s mission is to connect young adults impacted by a rare or chronic condition with social and emotional support in the hope of improving their quality of life. Get involved with them at