We’ve rounded up some stories highlighting the important work of grantees from our first round of Pervasive Needs grants: Adira’s Fast-Track Response to COVID-19.

As 2020 wraps up, we are highlighting the people and organizations impacting or impacted by ALS, Alzheimer’s, Huntington’s, MS and Parkinson’s. You can find the whole series here.

Your support today will help more great organizations and people—like those featured in this series—in 2021.
American Parkinson Disease Association

"Literally a lifeline to Parkinson's families"

Leslie A. Chambers, president and CEO of the American Parkinson Disease Association (APDA), describes the emergency relief they provided people in COVID's wake. "Through [Adira's] grant to APDA, we were able to offer support for food, lodging and utilities to nearly 100 families across the country," she says.

(English video on right, Spanish on left.)

HD Reach

Emergency safety and preparedness

Sandra didn’t have a place to ask questions about her Huntington's disease diagnosis, or learn about the latest research. All that changed when she found that HD Reach was there to provide accurate information to answer many of her questions.

She said: “After talking with [HD Reach Program Manager] Katherine, I felt like I had met her in person, she was awesome! She took the time to help me. She gave me very practical information, like the ID card to give to authorities while I’m driving and referrals for more HD specific services.”

HDReach SandraCrop
New Horizons Service Dogs

Emergency aid for service dog owners

"Today I passed out and fell in my backyard garden. My power was out and Arby was inside. I did not think he could hear me, but 10 seconds after I said his name he was there. Visibly distressed, he took a protective posture and then began an attempt to summon help, barking and howling. I told him he was good and quieted him as I assessed my modest injuries.

"He lay against me and remained ever vigilant. Although I was lucky enough not to need more assistance, Arby could have summoned the workmen (he can be loud ... ha). In any event, he is the best. Thank you." — Jeff Aherns

Huntington's Disease Society of America

Holding a virtual convention

The Adira grant enabled HDSA to continue to hold our annual National Youth Alliance (NYA) Day during our virtual convention and allow them to continue to get the support they need. This is a screen shot of the happy group.

— George Yohrling, Chief Scientific Officer & Chief Mission Officer

HDSA2020 NYA Day