Thanks to those who joined us!

June 16-17, 2022

Colorado's Health Capitol

303 East 17th Avenue
Suite 400
Denver, Colorado 80203


Our aim is to discuss and present up to five new programs addressing common needs at our larger ND Congress event in Washington, D.C., Nov. 17-18.

More than 50 people joined us in Denver, Colorado, and online over two full days June 16-17 to refine potential solutions to shared common problems across neurodegenerative disease populations.

Participants living with or caring for someone with ALS, Alzheimer’s or related dementias, Huntington’s disease, multiple sclerosis, and/or Parkinson’s disease jointly discussed the growing list of shared concerns with those experienced in providing services. Participants presented their ideas on how to best address them from their point-of-view.

Venue Information

We are grateful to Colorado’s Health Capitol for hosting the event at:

303 East 17th Avenue, Suite 400
Denver, Colorado 80203

Virtual participation is also available.


Wednesday, June 15

Movie Screening and Reception: “Augie

Thursday, June 16

Storytelling by people most impacted by ND began each session.


  • Welcome, Goals, Recap
  • Session 1: Navigation
  • Session 2: Mental Health

Friday, June 17

Storytelling by people most impacted by ND began each session.


For more information contact Lauren Ruiz ( or Marilyn Spinner (


There is no cost to attend ND Congress. Other potential expenses are detailed below.

People Living with ND and Caregivers

In-Person Stipend: $500 per day

Virtual Stipend: $250 per day

Lodging: Paid for by Adira

Travel: Paid for by Adira


In-Person Stipend: N/A

Virtual Stipend: N/A

Lodging: Responsibility of attendee

Travel: Responsibility of attendee

In-Person Attendance

Includes access to: 

  • Movie screening
  • Social reception
  • In-person site visit
  • Workshops
  • Breakout sessions
  • Storytelling sessions
  • Breakfast and lunch
  • Networking

Virtual Attendance

Includes access to: 

  • Movie screening
  • Workshops
  • Breakout sessions
  • Storytelling sessions
  • Access to recordings of sessions post-conference

COVID-19 Health & Safety Precautions

When traveling to the event, please follow CDC Travel guidelines.

At the event, proof of vaccination will not be required. We strongly encourage all attendees who are eligible for vaccination to be fully vaccinated and boosted.

The use of masks indoors is not required but is also strongly encouraged.

  • All event spaces are thoroughly cleaned and sanitized before and after sessions.
  • Masks will be available on site at no charge.
  • Rapid tests will be available on site at no charge.
  • Washrooms for frequent handwashing are available on site.
  • Simple tools to communicate your preferences regarding social and physical interactions will be available on-site. Let others at the event know if you are practicing social distancing, maintaining caution through limited interactions (e.g., elbow bumps), or are comfortable with close interactions and physical contact (e.g., hugs).

Lodging & Travel

Adira Foundation has arranged for attendees to reserve guest rooms at Hampton Inn & Suites Denver – Downtown located at 1845 Sherman Street Denver, Colorado 80203.

If you are a person living with ND or caregiver and are traveling to attend the event, Adira will make arrangements on your behalf. A member of the Adira Foundation team will contact you to work out the details of your travel (e.g., plane or train) and lodging.

If you are a professional, rooms will be available at Hampton Inn & Suites Denver – Downtown for a special rate of $199/night + taxes and fees. This rate is available until the reserved room block is full. If you are unable to get a room at Hampton Inn & Suites there are other hotel options nearby.

Nearby Airport: Denver International Airport

Amtrak Train Station: Denver Union Station

ND Congress is made possible thanks to our growing list of sponsors:

Add your logo to the list by contacting


For questions, please contact or call 804-417-0270.

Register Now

ND Congress

Let's get to work.

Learn more about what we’ve learned from people living with neurodegenerative diseases and their loved ones — and about what steps we are taking to help make their lives easier.

More About the Series